When Reagan was born, we were told to never let her get sick due to her GA-1 diagnosis. Sometimes I feel like the entire world just gave birth to a medically fragile child. Seven years ago, Rob and I become ultra aware of germs, being out in public, sanitizing, and protecting a baby with no […]

Four years ago, if you told me that we’d travel to another country WITH Reagan, I’d say you’re crazy. But here we are, on top of mountains, doing things we never even dreamed our family could partake in. This trip is exceedingly, abundantly more, than we could have ever imagined. Guys, there’s snow, in JULY! […]

Since the Dear Humana post, and email to their corporate relations blog post, I was contacted swiftly by Humana. First by customer service, and then by their social care department since I posted to social media. In our minds, Rob and I had decided to stand still (especially after those waves) and allow God to […]

Hear the cries of my heart, O Lord my God; listen to my prayer. Each morning and evening I put on the whole armor of God so  can stand against the wiles of the devil, but my spirit grows weary. Strengthen me; Equip me; Give me the endurance I desperately need during these times according to your […]

I am sitting here with hot tears just rolling down my face.  Reagan started foods…and it is really exciting. But my baby eating foods is not like your baby eating foods. Reagan’s dietician Sandy gave us menus to work with as Reagan starts food…we have a certain amount of Lysine Reagan can have a day. During […]

Funny things happen in the middle of the night.